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17th Annual Virtual MRKH Conference for Teens and Their Families
Saturday, November 4, 2022
9:00AM to 12:30PM EST
08:45-09:00 Logging in
09:00-09:10 Opening Remarks & Welcome – Emily Haffner BSN, RN, CPN
0910-09:45 Keynote: MRKH Presentation “General Reproductive Health” – Dr. Jessica Shim
09:45-10:20 Guest Speakers: “Journey with MRKH”
10:20-10:30 Bathroom/Snack Break
10:30-11:15 Discussion/Activity Groups:
Dilation Journey’s from Beginning to End
A co-led discussion geared towards patients who are interested in beginning/restarting dilation therapy for the creation of a vaginal canal.
Discussion will include the medical dilation process, recommendations for patients and parents about dilation, and also hearing from a guest speaker about her own journey and advice about when it is best to begin dilation
Intimacy and Relationships
A co-led discussion following a presentation from one of our guest speaker/MRKH advocate on the broad definitions of sex, sexuality, and promoting individual sexual pleasure as well.
History and Progress of Interventions for MRKH (Parent-only group)
A co-led discussion with a gynecologist provider and MRKH advocate/guest speaker who recently conceived through IVF and induced lactation to breast feed her own child
Provide information on the history of MRKH (history of diagnosis, progression of treatments)
Provide information on where we currently lie with treatments such as dilation, discussing fertility, IVF, uterine transplant, etc.
11:15-12:15 Break Out Groups
Newly diagnosed and younger teens
Older Teens
Young Adults
Parent Group #1
Parent Group #2*
Siblings, friends, significant others
12:15-12:25 Panel Discussion with Faculty – Q&A
12:25-12:30 ClosingType your paragraph here.
Agenda
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This annual conference is an opportunity for young women ages 14-25 who have been diagnosed with MRKH, and their families to come together for education and support. Our past conferences have been successful — thanks to all of our attendees and speakers!
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