What did your health care provider tell you about

the risks of STIs and MRKH

Want to help shape health care for people with MRKH? Take part in a new survey from Boston Children's Hospital designed to understand how health care providers counsel people with MRKH on sexually transmitted infections.


​We are a research team at Boston Children's Hospital asking you to take part in a research study on routine gynecological care for people with MRKH. We are interested in understanding how providers inform people with MRKH about sexually transmitted infections including human papillomavirus, commonly known as HPV. Your responses will help our team understand the routine gynecologic care and gynecologic health counseling that people affected by MRKH receive. It is not focused on the counseling you have received on fertility or sexual function.

Participation involves completing the following anonymous survey and should take less than 25 minutes. No identifiable information will be collected about you and there is no direct benefit for your completion of the survey.

If you would like to be eligible to win one of five $20 gift cards, please provide your e-mail address at the end of the survey. Risks are minimal, and they include uncomfortable feelings and a rare risk of breach of confidentiality. We have several measures in place to protect your health information. Your answers will be collected in a secure, password-protected website approved by our Boston Children’s Hospital’s Institutional Review Board. Access will be restricted to research team members who are approved by the Institutional Review Board for this study. Participation is completely voluntary, and you can stop taking the survey at any time.

Please click on the link below if you are interested in participating in our study. Thank you so much for your time and interest.

https://redcap.tch.harvard.edu/redcap_edc/surveys/?s=YLM9W3R7TP


If you have any questions, please contact Jessica Shim, Jessica.shim@childrens.harvard.edu.