US and International MRKH Groups and Non-Profit Organizations


Accord Alliance 

Accord Alliance’s mission is to promote comprehensive and integrated approaches to care that enhance the health and well-being of people and families affected by differences/disorders of sex development by fostering collaboration among all stakeholders.


Conditions that fall under this umbrella include: MRKH Syndrome, complete and partial Androgen Insensitivity Syndromes, Congenital Adrenal Hyperplasia, Swyer Syndrome, gonadal dysgenesis, cloacal extrophy, Klinefelter's Syndrome, hypospadias, micropenis, 5-alpha reductase deficiency, Kallman Syndrome, Persistent Müllerian duct syndrome, progestin-induced virilization, sex chromosome mosaicism, gonadal agenesis and Turner Syndrome  


A.M.A.R. (Spain) 

Somos unas organización sin ánimos de lucro, con sede en Barcelona, que surge con el fin de brindar infomación sobre el síndrome de Rokitansky y apoyar a mujeres y familiares que se encuentran con él. Brindamos información siempre desde una visión optimista.


ANIMarkhS Onlus (Italy)

Associazione ANIMrkhS Onlus Costituita nel giugno 2014, l’Associazione Sindrome di Mayer Rokitansky Kuster Hauser è l’unica associazione italiana a volersi occupare delle ragazze affette dalla sindrome di Rokitansky. Il nostro obiettivo primario è quello di informare e sostenere, non solo loro ma anche le loro famiglie e i loro medici.


Association Syndrome de Rokitansky (France)

Les objectifs de l'association sont d'accompagner les jeunes filles et femmes atteintes par cette malformation, ainsi que leurs proches tout au long de son parcours tant au niveau psychologique que médical.


Living MRKH

Living MRKH is designed to help progress the knowledge of Mayer Rokitansky Kuster Hauser Syndrome (MRKH) which defines the absence of a uterus which affects 1 in 5000 women.


Mid-Atlantic MRKH Foundation

At the Mid-Atlantic MRKH Foundation, we strive to unite and strengthen the MRKH community in the Mid-Atlantic region.


MRKH Africa Foundation

Our mission is to raise the awareness of congenital sexual disorders in Africa, incuding but not limited to Mullerian Agenesis. To fight the stigma that is associated with infertility and adoption and above all to change the African mindset of a woman who is not able to carry her child is taboo.


MRKH Belgium 


MRKH Connect

There are people all over the world with MRKH. You just have to find them. MRKH Connect has been created to help you do exactly that – find them, no matter where in the world you are.


MRKH Norge


MRKH-Syndrom (Germany)


Ninfas de Rokitansky (South America)

INFORMAR , sobre anomalías que interrumpan el correcto desarrollo social, psicológico, sexual y reproductivo. Para eso no se necesita financiamiento, sino voluntad de querer educar y orientar a quienes han sido diagnosticadas con el síndrome.


Russian MRKH Support

Если ты здесь, значит ты  сильная, смелая, красивая  и у тебя все обязательно получится. Грустить и плакать точно не стоит. Счастье - оно внутри нас!


Sisters for Love MRKH Foundation

To reduce a year of grief by one day or more, to connect women to women by an invisible bond and to learn the mastery of seeing and accepting beauty just as it is. Diverse. Eternal. Beautiful.


The MRKH Organization

For women with Mayer-Rokitansky-Kuster-Hauser Syndrome, also known as Mullerian Agenesis, Vaginal Agenesis, Congenital Absence of Vagina.


The Voice Project (Japan)