christie said: May 14th, 2013 11:40 pm
I found this out at 17 when my mom took me to the Dr. for not having my period. I pretty much accepted it early on in life, Yea! there were times when all my friends were having babies that I would get a little depressed. Then you get all the questions when ya'll going to have a baby? and don't you like kids? well of course I do and me not wanting any sympathy would just say maybe someday. But the way I have always looked at it, if God wanted me to have children I would. Prayer works and helps during the low times.
Assia Stepanian said: February 5th, 2013 11:12 am
My dear ladies, I am deeply touched by the courage, determination, and implementation of this site and project. Over the years of treating the young ladies with MRKH and other Mullerian problems, I have seen transformations that happens in young women as a result of this condition. It uniformly goes from fear, to anger, to loss, to misbelieve, to isolation, to finally asking a question of what is next and what is really now, to first timid and then overt discoveries of the beauty that is you all of you in your entirely, and the journey starts. The biggest challenge that I have faced in taking care of you is in knowing how beautiful you are and how I hate the fact that interventions are needed for you to gain what is supposed to be yours to start with. I became devoted to making sure that very careful and gentle interventions are applied, following a technique of a very dear to me person and mentor . Even knowing these techniques, I recently fully understood that you do not have to have interventions or surgery, that you, in fact, do not have to have any corrections at all. You have a full choice to do the surgery or other treatments or not have anything done because the biggest asset of your life you already have, and it is you with all the different qualities of yours and love that you share and receive from people and the world around you. We want for you to keep these young smiles, funny jokes, laughter, and other emotions that you chose to express sometimes so sporadically that we, as adults, can not even track at times, try chasing them, my Goodness :) Please adore yourselves fully and do not let something as small as MRKH define you. There are so many things to do! Please accept my deep love for you, A
Kirsty said: February 7th, 2013 3:32 am
I just want to say thank you! This site is amazing and its so heart warming to know that we are all not alone :) x
Kay Berry said: February 17th, 2013 10:13 pm
Great work Amy and Christine.
Valery said: February 22nd, 2013 3:44 pm
I wish I've found something like this many years before, I think it would have been so much easier for me. Still, it's never too late! Thank you ladies, this site is amazing!
Arianna Wilson said: February 20th, 2013 6:36 am
I am absolutely amazed at this. I recently found out that was born with this.... I just turned sixteen this past December and I haven't really figured out how to deal with this so I'm glad my mom showed me this site! I am so thrilled to know I'm not completely alone
Lindsie Schlotterback said: March 1st, 2013 6:50 am
hi:) i'm 20 now...i was diagnosed four years ago.. and just found this site. thank you for this. seriously.
Kayla Jones said: March 16th, 2013 11:31 am
Hi! I'm Kayla :) I was diagnosed with MRKH at 17, I'm now 26. I use to feel so alone, I never imagined I would meet anyone who was like me. This page is amazing.
Kimberly Brinson said: March 16th, 2013 8:32 pm
So Happy that I don't have to go though MRKH Sydrome alone anymore. God Bless. Hugs.. :)
India Reding said: March 16th, 2013 10:03 pm
I never thought id meet someone else who has MRKH like me! i found out when i was 17 and I felt so alone. I am so glad to have other women to talk to about things and them be able to understand where I'm coming from.
Carly said: March 20th, 2013 10:04 pm
Thank you guys for everything you have done! Y'all are such an inspiration to even those without MRKH. I am so thankful there are other women like me!
Cassie said: March 23rd, 2013 1:11 pm
This has been a long time coming. I hope to help the cause as much as I can! Amazing progress, ladies!
laura said: March 23rd, 2013 7:46 pm
this is wonderful, i know no that there are others people that have this condition and i am not on my own
NM said: March 24th, 2013 4:26 am
My diagnosis is still so hard for me to talk about. I still really can't even think about it without crying. Maybe I will gain some strength by interacting with other women like me. You guys are heaven sent.
RM said: March 27th, 2013 8:43 am
Diagnosed at 16, I was very confused at first, but ignored it for quite some time other than very brief research. In the last year or so, I've done a lot more research, finding others out there like me. It has helped tremendously, though I think there will always be a certain amount of pain. But thank you... the stories and the site are very helpful.
Diane MacKenzie said: April 13th, 2013 8:13 pm
My beautiful baby girl was diagnosed at 17 and is now 30. It's been a struggle for me over the years, seeing her go through this, it's has been extremely hard. Teenage girls are supposed live and laugh and be teenagers, but when first diagnosed they are dealing with all these other feelings and emotions that their friends just don't understand. I'm so happy I was there to listen when she needed it, hug her when she need it and most of all just loving her.
Deidre Szokol said: April 14th, 2013 6:43 am
Thank you for speaking so broadly about MRKH. Seeing a story much like mine on the news ... well, I don't have words to express my gratitude. I wish I could be there on May 11. Please let me know if there is anything in the Toronto area.
Nicole Jenkins said: April 18th, 2013 1:22 pm
I was diagnosed at 15. I was sad but not depressed. Met a doctor who performed Sigmoid Vaginoplasty to me at the age of 28. based on my readings on MRKH, stories and treatment, none was mentioned about Sigmoid Vaginoplasty. I'm 40 years old now, I felt no different than other women.
Renee said: April 25th, 2013 5:25 am
I never new until 2 days ago that I am not alone. that there are many women out there who struggle with this. Thank you
Octavia Everett said: April 29th, 2013 8:34 pm
Expressing my gratitude of how happy I am and able to meet so women just like me. I'm 26 and still trying to find myself being a women with MRKH. But I will say that I am UNIQUE and proud of it!
Brenda Pacheco said: May 1st, 2013 12:24 pm
I just found out about a month ago and have been devastated ever since..I am only 18, I feel as If though my whole life is done...I'm glad I found this website..I never knew there were so many woman with this disorder...what sucks is that NOBODY understands me :( I just want to cry my eyes out sometimes..
Melissa said: May 8th, 2013 5:28 am
I honestly don't know how to deal with this.... i;m not one to cry or really show emotions but i've pretty much been crying since i found out they won't do the surgery..... I'm only 17 i just want to be a normal teenager.... I hate this more than words can describe.... no one i know knows i feel! I can't live like this......
Rebecca Om said: May 9th, 2013 6:04 am
I'm comin' out, so you better get this party started! Reader, please sing that first line to the tune of Pink's song, "Get The Party Started." (I replaced her word “up” with “out.”) The song popped into my head the moment I clicked “like” on the BYMRKH Facebook page, which was a huge step for me. Thank you to the honorable Amy and Christina for coming out with this foundation of awesomeness. In turn, it has given me the strength to "come out" to my friends, family and beyond. I am so excited to join the journey-of-no-shame ahead. There would not have been this feeling of liberation without you! United we understand, divided we falter.
Cappy Panus said: May 13th, 2013 4:42 pm
I would like to contact Christy Ruth. I knew her when she was growing up and this is remarkable what she is doing. Cappy Panus
Erinn said: May 13th, 2013 10:56 pm
I am graduating from Concordia University in Montreal, Quebec with a MA in Drama Therapy and I just finished my performance about the experience of infertility and MRKH two weeks ago. It was amazing to share my story with other people, and to receive feedback and validation. I also found it to be an important process of understanding and expressing the complex emotional and psychological effects of this disorder. I encourage others to be vulnerable as well, in small ways, and share their true selves with others.
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